Schedule

Wednesday
2019-10-02
The Inn at St. John’s
Thursday
2019-10-03
The Inn at St. John’s
Friday
2019-10-04
The Inn at St. John’s
The Inn at St. John’s
The Inn at St. John’s
The Inn at St. John’s
12:45 - 14:45
Pre-Conference Workshop: Key Legal Agreements for Data Sharing

This session will provide attendees with an in-depth understanding of key legal agreements that are needed when engaging in cross-sector and cross-jurisdictional data sharing. We will discuss data sharing agreements, memorandum of understanding, HIPAA business associate agreements and qualified service organization agreements. The goal of this session is to help you understand what each agreement covers, how each agreement should be structured and which agreements are necessary to meet your data sharing objectives.

Jennifer Bernstein, JD, MPH
Deputy Director, The Network for Public Health Law - Mid-States Region Office
14:45 - 15:00
Break with drinks and light snack (covered by workshop registration fee)
15:00 - 17:00
Pre-Conference Workshop: HIPAA Hybrid Entity Rules & Tools

This workshop will provide attendees with an understanding of why the hybrid entity policy option may be beneficial, as well as what tools are needed to become a hybrid entity. This workshop is directed to fully HIPAA covered entities that are interested in exploring hybridizing, as well as hybrid entities that have not recently re-assessed their coverage status. Participants who register by August 1 will receive an invitation to submit a use case for small group discussion with hands-on application of tools from the Network’s new HIPAA hybrid entity toolkit.

Sallie Milam, JD, CIPP/US/G
Deputy Director, The Network for Public Health Law - Mid-States Region Office
16:00 - 18:00
Evening registration
17:00 - 19:00
Reception
Registration opens
08:00 - 09:00
Breakfast
08:45 - 10:00
Welcome and Opening Keynote
Vivian Singletary, MBA, JM
Director, Public Health Informatics Institute
10:00 - 10:15
Break
10:15 - 12:15
Concurrent Sessions

Concurrent sessions based on legal parameters of collecting or sharing different types of data. These sessions will be repeated in the afternoon to allow participants to attend more than one of each.


Breakout one: Navigating law to share data

• Speakers: Denise Chrysler, Colin Boes
Breakout two: Behavioral, mental health and primary health care
This session examines how HIPAA, 42 CFR Part 2 and state mental health laws create designated pathways for behavioral health, mental health and primary care data collecting and sharing. All within the context of these practice areas, presenters provide an overview of identification of law by data type and data source; review permissible uses and disclosures, along with prerequisites, conditions and limitations; address application of these laws to a data sharing issue; review legal solutions, such as a consent process, disclosure for research with IRB/Privacy Board approved waiver or de-identification; and review establishing and documenting terms of data sharing. This session is designed for individuals who already have a fundamental understanding of data sharing. Participants receive an in-depth review of behavioral health, mental health and primary care law identification and navigation, along with participating in small group discussion around a variety of data collection and sharing scenarios.
• Session Leader: Sallie Milam,
• Speaker: Elizabeth Scurria Morgan
Breakout three: Education
• Speaker: Kerri McGowan Lowrey
Breakout four: Public health and environmental health
• Speakers: Jennifer Bernstein, Colleen Healy Boufides, Rachel Hulkower

Click on a presenter’s name below to learn more about them:

Denise Chrysler, JD
Director, The Network for Public Health Law - Mid-States Region Office
Colin Boes, JD
Privacy Specialist - Michigan Department of Health and Human Services Legal Affairs
Sallie Milam, JD, CIPP/US/G
Deputy Director, The Network for Public Health Law - Mid-States Region Office
Elizabeth Scurria Morgan
First Deputy General Counsel and Director, Privacy & Data Compliance Office, Massachusetts Department of Public Health
Kerri McGowan Lowrey, JD, MPH
Deputy Director and Director of Grants and Research, The Network for Public Health Law - Eastern Region Office
Jennifer Bernstein, JD, MPH
Deputy Director, The Network for Public Health Law - Mid-States Region Office
Colleen Healy Boufides, JD
Deputy Director, The Network for Public Health Law - Mid-States Region Office
Rachel Hulkower, JD, MSPH
Public Health Analyst and CNA contractor, Public Health Law Program, Centers for Disease Control and Prevention
12:15 - 13:30
Lunch buffet
12:30 - 13:30
Lunch Panel

Panel with 3 data sharing collaboratives that will illustrate they legal issues they have faced, identify and explain applicable law, discuss how legal issues were resolved and identify lessons learned and best practices.

• Moderator: Peter Jacobson
• Panelist: Monika Tzoneva

Click on a presenter’s name below to learn more about them:

Peter Jacobson, JD, MPH
Professor Emeritus of Health Law and Policy, University of Michigan School of Public Health
Monika Tzoneva, JD, PhD, CHC
Compliance and Privacy Officer, Department of Community and Human Services - King County, WA
13:30 - 13:45
Break
13:45 - 15:45
Concurrent Sessions (repeated)

Concurrent sessions based on legal parameters of collecting or sharing different types of data.


Breakout one: Navigating law to share data
• Speakers: Denise Chrysler, Colin Boes
Breakout two: Behavioral, mental health and primary health care
This session examines how HIPAA, 42 CFR Part 2 and state mental health laws create designated pathways for behavioral health, mental health and primary care data collecting and sharing. All within the context of these practice areas, presenters provide an overview of identification of law by data type and data source; review permissible uses and disclosures, along with prerequisites, conditions and limitations; address application of these laws to a data sharing issue; review legal solutions, such as a consent process, disclosure for research with IRB/Privacy Board approved waiver or de-identification; and review establishing and documenting terms of data sharing. This session is designed for individuals who already have a fundamental understanding of data sharing. Participants receive an in-depth review of behavioral health, mental health and primary care law identification and navigation, along with participating in small group discussion around a variety of data collection and sharing scenarios.
• Session Leader: Sallie Milam,
• Speaker: Elizabeth Scurria Morgan
Breakout three: Education
• Speaker: Kerri McGowan Lowrey
Breakout four: Public health and environmental health
• Speakers: Jennifer Bernstein, Colleen Healy Boufides, Rachel Hulkower

Click on a presenter’s name below to learn more about them:

Denise Chrysler, JD
Director, The Network for Public Health Law - Mid-States Region Office
Colin Boes, JD
Privacy Specialist - Michigan Department of Health and Human Services Legal Affairs
Sallie Milam, JD, CIPP/US/G
Deputy Director, The Network for Public Health Law - Mid-States Region Office
Elizabeth Scurria Morgan
First Deputy General Counsel and Director, Privacy & Data Compliance Office, Massachusetts Department of Public Health
Kerri McGowan Lowrey, JD, MPH
Deputy Director and Director of Grants and Research, The Network for Public Health Law - Eastern Region Office
Jennifer Bernstein, JD, MPH
Deputy Director, The Network for Public Health Law - Mid-States Region Office
Colleen Healy Boufides, JD
Deputy Director, The Network for Public Health Law - Mid-States Region Office
Rachel Hulkower, JD, MSPH
Public Health Analyst and CNA contractor, Public Health Law Program, Centers for Disease Control and Prevention
15:45 - 16:00
Break
16:00 - 17:00
Session – Public Benefits and Private Risks

Public Benefits and Private Risks: How should Public Health Policy properly balance societal ethical interests and individual rights?

Balancing important societal ethical interests (justice, beneficence and public good) with individual rights and protections can be a challenging issue for public health policy. This session will provide an overview of public health data de-identification as an important tool to make data more freely, safely and legally available to public health and communities while appropriately balancing public and private interests. This session will explain the process of data re-identification risk assessments in informing data disclosure policies and provide an overview of the HIPAA “statistical de-identification” provision. Attendees will develop an awareness of the efficacy of modern data de-identification methods and the importance of utilizing a combination of technical and management controls (such as data use agreements) to appropriately mitigate privacy risks in balance with public benefits.

Daniel Barth-Jones, PhD, MPH
Assistant Professor of Clinical Epidemiology, Columbia University Mailman School of Public Health
17:30 - 19:30
Reception in Atrium
Registration
08:00 - 09:00
Breakfast
09:00 - 10:15
Concurrent Sessions

Breakout one: Data Governance
• Speaker: Steve Gravely
Breakout two: Open data, FOIA and sunshine laws
• Speakers: Elizabeth Scurria Morgan, Katherine Alford
Breakout three: Ethical considerations of data sharing
• Speaker: Cason Schmit

Click on a presenter’s name below to learn more about them:

Steve Gravely
CEO - Strategic and Legal Advisor to Healthcare Organizations, Gravely Group
Elizabeth Scurria Morgan
First Deputy General Counsel and Director, Privacy & Data Compliance Office, Massachusetts Department of Public Health
Katherine Alford, JD, CIPP/US
Deputy General Counsel, Massachusetts Department of Public Health
Cason Schmit, JD
Research Assistant Professor, Texas A&M University School of Public Health
10:15 - 10:30
Break
10:30 - 12:00
Closing Session

When public health shares information with communities, it balances assuring the public good with the risk to individual privacy. This session examines how public health utilizes mapping technologies to monitor health status to identify and solve community health problems; diagnose and investigate health problems and health hazards in the community; inform, educate, and empower people about health issues, creating a space for public action; and, assist public health agencies in fulfilling the 10 Essential Public Health Services. Geographic information systems use geographic data, such as streets, blocks or neighborhood areas and attribute data, such as social determinants of health, and link the two in a map. Attendees learn about implementing privacy controls for useful and locally relevant map design.

Estella Geraghty, MD, MS, MPH, GISP
Chief Medical Officer, Esri
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